I’ve
been wondering why my arthritis chose this winter to reignite. I may not
understand completely why it’s back until it’s gone again (one always hopes,
right?), but I have some ideas. This life is about learning, and as far as my
bones go, I think I failed grade three the first time.
The
first time around, I declared war. I fought to be as normal as everyone else in
my world. I didn’t always make it, of course. I had a ton of sick days during
those years. I was deeply, truly angry when it beat me, and I used that fury to
redouble my efforts, sometimes successfully and sometimes not so much. There
were no trippy hippy platitudes for teenaged Ru, that’s for sure. I was locked
in mortal combat with a monster and one of us was gonna die.
When
it finally burned out, my relief was overwhelming. I had won. I was alive and my
nemesis wasn’t.
I was
also wrong. Oh, I was most certainly alive, but the bones—and my terror of
their return—have haunted me to this day. The trouble with your worst fear is
that it can manifest in ideal conditions. I have no idea what those conditions
are, but something went haywire last fall.
Welcome
back to grade three, Ru.
I’m a
quicker study these days, though. This relapse happened for a reason. I hope
it’s a short term stint, but this time I’m doing my homework between meltdowns.
(I still have them, those opaque moments when the fear of indefinite hurting
immobilizes me.) Anyway, here’s what I’ve learned so far:
Living with chronic pain is not a
competition.
It’s a process. If I didn’t know it before—which I apparently didn’t—I know it
now. Rather than a battle for supremacy between me and my compostable
container, it’s a cooperative effort based on mutual respect. I give it what it
needs to feel better, be it ice, rest, or the occasional Aleve, and it stops
hurting so much. Who knew?
Some days are easier than others. As my Scottish mum would
say, you’ll be “up one day and doon the next.” Accept this and move on. Down days
are frustrating, and sometimes you’ll weep anguished tears. That’s okay. Tears
are not a sign of weakness. Tomorrow will be different. Sure, it might be worse
... but it might also be better.
Stay in the moment. Some of them (many of them)
will hurt like the dickens, but not every one of them. Occasions do occur when
the pain is overshadowed. Laughing with a friend. A hot cup of tea. Cuddling a
teddy bear. Sun breaking through cloud. Watching a favourite movie. Even
wrangling with a math problem can provide a welcome distraction. Cherish those moments
by embracing, welcoming, savouring and otherwise being grateful for them. (There
is always space for gratitude.)
Do not look too far ahead. Contemplating a future of
non-stop coping will make you want to cut your throat. This saps strength
better applied either to the present moment, if necessary, or spared for a
moment when you really need it.
Rest and rejuvenate. Fighting pain while
operating in day to day life takes more energy for you than it does for your
healthy friend/neighbour/co-worker. I resisted this notion in my teens, when
all I wanted was to be as normal as my buddies, but as a middle-aged adult, if
I have to, I nap on a weekend afternoon. Sometimes I can’t keep my eyes open; at
other times, I doze while listening to my silly jazz station. It’s nice for
most of us to lie still once in a while. For you, it’s imperative!
Admit when you’re not up to par. It takes courage to say you’re
unwell. I wish it didn’t. As with tears, pain is not a sign of weakness. It’s
frigging pain. When you’re in it,
it’s okay to say so (just try to maintain your dignity while doing it). At my
worst last November, I discovered how much my co-workers care for me when they
rallied to make my life easier during a particularly trying phase at the
office. My honesty gave them a chance to be as kind and generous with me as
they claim I am with them. Win-win!
Wash dishes by hand, in purely hot water
(no cold), and wearing rubber gloves. Aching finger joints love the heat and
the gloves ensure you don’t strain them further by gripping too hard on wet
stoneware.
Remind yourself that, though pain is
inevitable, suffering is optional. You may not have a choice about when it hurts, but you can
certainly decide how to handle it when it does.
Finally, you may be alone with the pain, but you are
not truly alone. Each of us is loved somewhere, by someone. You are no
exception. It may be hard to remember this when you’re living your day one
breath at a time. That doesn’t make it a lie. Reach out. Someone will answer.
With
love,